Today was a big day. Noah received all three sacraments of the Catholic Church. Baptism, first communion, and confirmation. He did great! Tomorrow we get on a plane and head to St. Louis.
Tomorrow Noah starts his clinical trial on a drug called VTS-270. This drug is crucial to Noah’s livelihood. If it can hold off the damage until a cure or better therapy is available, then we have a chance.
I don’t know if we are ready, but we are packed. We have everything we need and two plane tickets in hand.
I can’t think of any other person walking this earth that is more equipped to help carry Noah through this journey. If there is ever anything that I can do, please don’t hesitate. Lean on Him through your trials and tribulations. Prayers up.
Godspeed Justin, Larissa and sweet boy Noah ♥️